People at a SPECTRUM workshop sitting around a table listening intently to Know

Data Equity at MCHP

What is data equity?

Transcript

In education, healthcare and beyond, big decisions are based on data. But data are not neutral. 

Why not? 

Because behind every number are people and systems whose biases shape experience. Power and privilege influence who gets counted and what stories data tell. If some communities are left out or seen only as a negative statistic, that's unfair. No one wants to be invisible in data that shapes our lives.

For example, if someone can't access or doesn't trust a doctor, they won't show up in health statistics. Health records can reflect a privileged subset of those with access. Lack of care causes systemically marginalized communities to be over represented in data on chronic conditions and emergency care. 

This is where data equity comes in. Data equity means making sure data is collected, analyzed, interpreted, and shared fairly. In plain language, it's about asking who is included, who is missing. Are we interpreting the data without bias? Why does it matter? Data drives decisions for everyone. If we ignore bias and gaps, we risk unfair or harmful policies. As the why am I always being researched guide says, if evidence matters, we must care how it gets made.

But when we use data equitably, it can highlight injustice and drive change. Fair data can show which neighborhoods need clinics or which students need support, leading to better outcomes for all. 

The Manitoba Center for Health Policy puts data equity into action. As a data steward, we securely link data from health, education, social services, and more while promoting community engagement to get a full picture of community well-being. MCHP also makes sure data is used ethically. We recognize biases in the data and work to fix them. MCHP respects indigenous data sovereignty, partnering with First Nations, Métis, and Inuit communities so research benefits them. It's about shifting questions away from looking at problems with people and towards examining problems with systems, resulting in impactful solutions. It's about helping researchers ask better questions and find solutions for those who need it most. using data to improve lives for all Manitobans. 

So what can we do? We can support ethical, equitable data practices, ask questions about how the data is collected and used. Advocate for support of community engagement and indigenous governance structures. When data is fair and inclusive, everybody benefits.

MCHP’s commitment to data equity

An important value that guides our work is IDEA (Inclusion, Diversity, Equity, and Accessibility). This value shapes how we do research and how we use our findings to help improve health and social services in Manitoba, making them equitable for everyone. In the data research landscape, IDEA is closely connected to data equity. 

While MCHP does not collect the administrative data we use, our role includes organizing, linking, analyzing, and sharing the data. At each step, we make sure equity is not just considered but that it is embedded into the research process.

Actions towards data equity at MCHP

Embedding data equity in our work aligns with several of MCHP’s strategic priority areas. Here are some of the things we are doing:

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    Learning about inequities in data

    Creating learning modules to highlight how inequities exist in data and how data is used. We offer staff time to read, watch, or listen to materials made by Indigenous people, Black people, People of Colour, women, and disabled people and discuss how their experiences relate to the work we do at MCHP.

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    Creating tools to improve access

    Together with the Health Data Research Network Canada, we are building new tools to help more people find and use data. These tools include concept dictionaries, common data models, data finders, and new analytic techniques.

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    Collection of demographic data

    We support the collection of data related to people’s race, ethnicity, Indigenity, gender, sex, and sexual orientation. Manitoba is a leader in this area, as we are the only province in Canada collecting race, ethnicity, and Indigeneity data across the whole population (led by Dr. Marcia Anderson). Manitoba is the also the first province to explore the collection of gender, sex, and sexual orientation data at a population level using the Canadian Institutes for Health Information new data standards (led by Dr Murdoch Leeies). MCHP supports robust data governance and centring community in the collection and use of these data.

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    Improving metadata

    Piloting ways to improve metadata (information about the data, like how it was collected and what it includes). Right now, we are working with metadata to find where systemic bias is hidden, and how to highlight it more clearly. We are also developing a “data biography” to show bias and real-life context in metadata.

Data equity resources

Data equity resources in development

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Contact us

Manitoba Centre for Health Policy

Rady Faculty of Health Sciences, 
Room 408-727 McDermot Ave.
University of Manitoba
Winnipeg, MB  R3E 3P5 Canada

204-789-3819